Oh, sweet blog reader: I can’t believe you haven’t given up on me yet!
Sometimes, over coffee with a friend, I will share a story or experience that has marked me in the past three years. Often the friend will respond, “I sure hope you’re writing all this down.” But I’m mostly not. I’m mostly just riding in this car, so busy hoping the trip will end while also hoping it never ends, that all these stories tend to seep like water into sand.
I’m comforted by the fact that several ALS memoirs I’ve read are a little “holey” in their consistency. You’ll notice large chunks of life missing from their chronicle of the journey. I totally get it. ALS just sort of takes over. It bosses your time around. It shanghais your emotions. There are days when I’m determined to sit down and write about a struggle or a victory or an issue that we face on this battlefield, hoping it will be a lifeline to someone else down the road. I mean, I really, really want to. But the thought of writing about it -in addition to living it – is just too daunting, while the idea of an evening on the couch with Steve watching Sherlock (again) is very appealing. And that idea usually wins.
So that’s one reason my blog has been quiet. Another reason is that I’m working on a new book which has a very tight deadline (March 20!), so most of my words are walking that direction. I’m SO excited about this project – it’s been life to my soul recently – and I’ll share more about it soon. Until then, I just wanted to throw this post up to hold my place here like a traffic cone in a parking spot. Please, don’t give up on me. Please, don’t forget me. I’m still here; just quiet.
And I love you,