I think one of the most dangerous consequences of any fierce fight, is the way it shrinks our vision to primarily the soil of our own battlefield. Sometimes I feel that if I’m not careful, I’ll get stuck inside an ALS bucket, where our issues are the issues. It’s like living inside your own, personal 24-hour news cycle and all the stories are about medical stuff and caregiving stuff and insurance stuff and sorrow stuff. And it can happen with any fight we face. I’ve known people who can’t last six sentences in conversation without mentioning the ex spouse who did them wrong. I totally get why this happens, but I firmly believe I need to work to get rid of the dumb bucket rather than justifying its existence.
This is a challenge in blogging. Writing helps me process what I’m experiencing and connect some of the emotional dots. It also creates camaraderie between those going through similar situations. I don’t think writing about our war is wrong; I just want to be so careful that I don’t become confined or defined by it. While people often tell me that what they’re going through is nothing compared to what we’re going through – I actively and aggressively resist that idea. The minute I begin thinking that I’ve drawn the worst hand available, I am just one short hop away from life in that bucket, where I am all that matters. And…ew.
This morning, I read an article about the girls who were abducted in Nigeria. And I read this strong piece from Sarah Bessey about the issue of sexualized violence. Then I read a letter from the child we sponsor in Indonesia so she can attend school, and had so much fun writing her back and sending her some Christmas money. My coffee money for one week is her Christmas. Her entire Christmas. I mean, l this is a child – a real child with hopes and dreams and gifts an fears – who cannot attend school without the help of strangers. These are global issues. Moral issues. Issues embedded into the fabric of our society that rampage and ravage tender hearts and innocent lives. We cannot support every cause or defend every victim, but I cannot live in a world where the only victim is me. My life is hard, yes. I’ve written about a million words on the nature of a villain like ALS, and I’ll write more. But as I’ve also been processing burnout, I’m seeing that one of the best ways to stay clearheaded in crisis is to realize there’s a world beyond your war.
I cannot escape the battlefield of ALS. It is the ground on which I live and fight. But I will resist until my dying breath the natural tendency to build walls around my battlefield, that shut up our hearts and our compassion and our righteous outrage toward social injustices on the global stage. This is not just right, it’s good. It’s good for my heart and my outlook. It’s good for my family and our army. It’s good for my future and it’s good for the world that God so loves.
Feeling stuck in a bucket today? Push your vision out beyond your playing field and gain some quick perspective. And then do something. Pray, send money, send a note, send hope. Make a move in someone else’s war and see how it changes the landscape of your own.
With hope,
Bo
Oh, Bo, I so needed to hear this. Sometimes I feel trapped in these ALS walls and have to try really hard not to be resentful of those who are going merrily along their way having a wonderful life. I realize I don’t need to explain to people why my husband is in a wheelchair and/or can’t shake their hand. It’s not about ME and wanting sympathy! Thanks for sharing this much needed perspective.
amen, Amen….AMEN!!! Bucket or not, we must stay relational – it’s how the Father made us.
First, I must say, “Jonifrances.com” is a work in progress, so please, you can judge my writing, but don’t judge the website, just yet.
Bo, I so agree with you. I think it’s early for anyone to judge your consumption of ALS and the battle you’re in. But, even given that, I believe there is nothing more powerful in its ability to move us along, than giving to others. We can do that in numerous ways. It doesn’t always mean giving of time or resources. Simply reading an excerpt from your blog and hearing your heartache that turns our emotion into prayer is removing ourselves from our own heartache, if even for a moment. Going a step further with actual giving of ourselves in some way will lift our head for a moment, and give us the sense that life exists outside of the small world we’ve found ourselves.
A strategy of looking up and out is good for all of us. For those in the battlefield, it provides one with that momentary sense of the life you may have known before the battle. For those who can’t shake the memory of an old battle, I can’t say enough about the benefits of looking up and out, toward someone else’s battle, bringing them along to health. In the process, God’s magic happens. In some cases, one might think it will take God’s magic to restore a broken heart, or broken spirit. But that’s why it’s magic, because it’s something only God can provide. No explanation necessary. When we give, we receive, and we heal.