When I was little, we would sometimes travel to the Oregon Coast on mini vacations. I both love and fear the ocean so it took me awhile to get brave enough to put my toes in it. My parents also fear the power of the crazy coastal sneaker waves […]

  Hi friends,   This Wednesday is Steve’s 53rd birthday.  We always struggle with what to get for him because at this stage of his journey, he really does have everything he needs.  What he loves most of all is visits with friends, but he doesn’t have the energy for […]

I get a lot of emails from caregivers and people going through illness or crisis and the thing I hear the most, by a landslide, is “thank you for being so honest.”   Can I be honest?  Honesty is hard.  It’s hard for many reasons; here are a few:   […]

  I’m here again tonight where I often find myself: sitting in the dark beside Steve’s bed, not ready to sleep but not willing to leave him. Nights are both hard and good.  They’re hard and then they’re good.   Around 10:30 every night, I give Steve his night meds […]

  The first forty-five years of my life were marked by the discovery of hidden strength and abilities.   I learned bravery as I attempted a lot of new things, knowing I could always rebound and rebuild.   The past four years of my life have been marked by the discovery of the […]