Of all the things in the land of caregiving that make me feel uncomfortable and inadequate, showers are the worst.  I dread it every time. Steve is still much bigger than I am and he is mostly dead weight.  The floor is hard and slippery, falls are dangerous, he […]

    Birthdays are not my favorite. It’s not about getting old, I like getting old. it’s not even that they’re bad at all. They’ve just never really been my thing.     This birthday, however, this year that hangs in the balance between two decades of my life, feels significant. […]

  I wrote this list two years ago, but it’s just as true today.  I’m re-running it since the topic has come up so much recently and have added an important sixth point at the end.   Let me start by saying: I certainly do not speak for everyone in crisis. […]

    One of the most miraculous things to come out of our ALS Fancy Dance was this photo.       Miraculous, because I didn’t think Steve would be able to get out of his wheelchair at all that night.  It never occurred to me that he would even […]

    I remember the day that Victoria came home and said, “When I tell people about dad, I can tell they think we’re a tragedy.”     I knew exactly what she meant.  I saw it in their faces, too: horror, sadness, fear.  I felt the very same things […]