One of the great gifts in my life right now is my ALS Wives support group – ten or so women from all over the country, none of whom ever wanted to be a part of this club.  They are passionate, loving, brave and fiercely devoted to their families.  It […]

  Over the past few years, but especially in the past week, I’ve watched some amazing wives live out their wedding vows pretty flawlessly. They have held and comforted the men who could no longer hold and comfort them. They have said no to attractive distractions so they could say […]

    It’s been a tough couple of weeks on the ALS frontlines, and last night was especially hard, filled with breathing mask difficulties and some scary choking episodes into the wee hours. I’m sure every serious illness comes with problems for which there are no solutions, but ALS seems […]

This week has been a wild ride, I tell you.  Book launch on Tuesday, which is fun because writing a book is a fair amount of work.  Then they sold out everywhere…which is not fun, because people will quickly move on to other reading options, of which there are trillions.  […]

    This morning in my office, I’m listening to St. Matthew Passion, BWV 244 , Aria “Erbarme Dich” by Bach.  It is a beautiful, haunting aria and in the voice of the soprano I hear longing and loneliness and passion and strength and weakness and so much beauty.  What […]